Patient Story - April
"Past denial of medication coverage has greatly and frequently impacted my treatment decision. For close to 8 years I was taking Remicade with great success in keeping my UC in remission. However, the hoops I had to jump through every year to make sure that my insurance company would continue to cover my medication was a mess. I also felt a sense of anxiety that at any point my insurance would drop my coverage and I wouldn’t be able to afford the medication that I depended on to keep me alive. It was due to this anxiety/fear that I decided to try to treat my UC naturally, with extreme diet and lifestyle changes alone. When that didn’t work, I eventually ended up on medication again and I greatly resisted going back on another biologic because of the same fears I had from before. Eventually my disease progressed to the point where it was no longer an option and I had to go back on a biologic. It’s still a fight every year with the insurance company to continue covering my medication."
Watch April's story to uncover why "Nonmedical Switching" and other unnecessary insurance hoops are such dangerous practices for patients. Watch her story.
Find out from real patients what life with chronic disease feels like. The invisible pain, the insurance battles, and the hidden full-time job "being sick" entails, can feel like too much at times, and it is a weight you shouldn't have to carry alone.
It is so important that patients with rare and chronic diseases are heard. Follow patient stories detailing life with lupus, multiple sclerosis, thyroiditis, Chron's, RA, and other chronic and rare diseases.
Are you an infusion patient that wants to help shed light on the chronic disease journey? Reach out to the Infusion Access Foundation team so we can hear your story and help you find the right pathway for you to be really heard.
Infusion Access Foundation (IAF) is a community of patients united to protect access to treatments that you get at a clinic, such as infusions and injections. We support each other across all diseases and advocate with one voice that reaches policy makers.
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