I Teach Doctors About My Rare Condition | BORN DIFFERENT

Published: 03 June 2022
on channel: truly
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A 23-YEAR-OLD woman was born with a rare genetic condition called Cystinosis which affects only 3,000 people worldwide. Cystinosis affects Millie’s eyes and the function of her kidneys - she’s had two kidney transplants and has endured several operations on her joints. As a result of her condition, the Bristol native was tube fed from the age of one to 18 and developed rickets - which affected her bone growth. Millie is 4ft 7" tall and said her height used to be a massive source of insecurity when she was younger. Millie credits makeup for inspiring her to recover from all the struggles she went through due to her condition. Millie is about to launch her makeup line - Human Beauty - with a mission statement to make makeup accessible for everyone. Millie told Truly: “I’ve used makeup as a form of therapy through times of bad health and this made me really passionate about making sure everyone can experience the power of makeup like I have.” Millie has also become an advocate for others as well as herself having learnt all about her condition - and feels she knows more than some doctors at times.

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Videographer: Peter Tat
Producers: Rafaela Kuznec, Emika Berry, Kim Nguyen
Editor: Vanessa Nascimento

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