Overcoming a Cavernous Malformation: Rachel Paverman's Cavernoma Recovery Journey
In this inspiring episode, Rachel Paverman shares her remarkable story of battling a brainstem cavernous malformation (cavernoma) and the challenges she faced during her recovery. Initially misdiagnosed as an aneurysm, Rachel's cavernous malformation was discovered in June 2019, leading to three critical surgeries to remove the malformation after two major bleeds. Despite ongoing challenges caused by a Brainstem Cavernous Malformation including right-side paralysis and hearing loss, Rachel's journey of cavernous malformation recovery is a testament to resilience, patience, and positivity.
Rachel has chronicled her experiences in her memoir, "To the Abyss," and continues to support others affected by cavernous malformations through her volunteer work with the Alliance to Cure Cavernous Malformation. Her story offers hope and practical insights for anyone dealing with a cavernoma or navigating the complex path of cavernous malformation recovery. Join us to learn more about how Rachel turned adversity into a powerful journey of healing and self-discovery.
📘 Purchase Rachel's memoir "To the Abyss" on Amazon: [Link] 🌐 Discover more about Rachel and her advocacy work: [www.rachelpaverman.com]
Highlights:
00:00 Introduction
01:03 Cavernoma And Early Symptoms Of A Stroke
07:01 Life After Surgery and Early Recovery From Cavernoma
13:03 Current Life and Adaptations
25:30 Writing A Book
32:39 Emotional And Mental Recovery
43:28 Dealing With Tarsorrhaphy
50:13 Hearing Issues After The Surgery
1:03:52 Lessons From The Stroke
Patreon:
/ recoveryafterstroke
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